Katie Renfroe home after surgery (SLIDESHOW)

Published: Thursday, December 6, 2012 at 10:09 AM.

The rare disorder caused portions of her head and face to be unusually large. She had part of her brain removed as an infant to control seizures.

Now, a surgeon in Hollywood will perform a series of surgeries to try to restore some normalcy to the little girl’s life. The weight of her cheeks was so heavy she got tired holding up her head.

Stitches line the side of Katie’s face near her hairline, and her left cheek remains swollen from the surgery. She also has a little bruising around her eye.

But she is alert, smiling and doing all the things she did before the surgery.

Her dad, Danial, who has been by her side virtually every minute, said Katie seems to be in very little pain. On their first night home, he slept on the couch a few feet away.

“I’m surprised my own self how good she looks now,” he said. “She’s pretty strong.”

Family members disagree about how rare the surgeon said her condition was. Their recollections range from one in a million to one in 10 million.

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